Volume 9, Issue 2, August 2005
Message From the Coordinator
SIG Members at ONS Congress Develop Future Goals, Receive Awards

Judith (Judie) Kehs Much, CRNP, AOCN®, APRN-BC
Allentown, PA

For members who were unable to go to the ONS Congress this year, let me tell you that the Cancer Genetics (CAG) SIG activities were really exciting!

First, join me in congratulating two of the SIG leadership team members on their awards, which were announced at Congress. Marilyn Kile, RN, MSN, CS, AOCN®, APRN, our wonderful SIG newsletter editor, was the recipient of one of the ONS Foundation Practice Change Research Grants. Agnes Masny, RN, MPH, MSN, ex-officio, was the recipient of the Mary Nowotny Excellence in Cancer Nursing Education Award. Kudos to both of you! There are not two more deserving people!

This year’s Congress included an array of topics related to cancer genetics. Agnes Masny put together a tremendous program for Pre-Congress titled “The Power of Partnership.” Agnes spoke about new risk reduction strategies, which have been reported recently, and gave a “how to” in evaluation of the evidence prior to changing practice. Jeffrey Weitzel, MD, spoke about diagnosis and management of hereditary breast and ovarian cancer. Heather Hampel, MS, CGC, discussed the project she has been working on involving screening for Lynch syndrome in all patients with colorectal and endometrial cancer. Finally, Terri Bogan, BSN, used her practice in genetics as an example of a model “partnership” with Kristin Augustine, CGC, her genetic counselor partner. Frankly and sadly, the session was poorly attended, but to all who were there, it was certainly worth the time and the cost.

Our SIG Networking Meeting was a great one with 24 individuals in attendance—at least four of who were genetic counselors. Their presence was critical to the work of the meeting—-building partnerships. It was wonderful to have an open dialogue between the counselors and our nursing membership. I point out “our nursing membership” because we have a growing affiliate membership of genetic counselors. Karen Stanley, RN, MSN, AOCN®, FAAN, ONS president, was present for much of the meeting, providing her vision and wisdom as we struggle with the definition of partnership with other organizations beneath the ONS umbrella. We left the meeting with a number of “tasks” at hand:

  1. Draft a proposal regarding joint membership or “formal liaison” between ONS and the International Society of Oncology Nurses in Genetics (ISONG), and ONS and the National Society of Genetic Counselors (NSGC).
  2. Propose that ONS consider providing continuing education for genetic counselors.
  3. Define what was suggested as a “multidisciplinary cancer genetics SIG”--either virtual or Web based.
  4. Draft a proposal and a budget for a joint educational offering between ISONG, NSGC, American Society of Clinical Oncology, and ONS.
  5. Discuss with Congress committee the mechanisms of getting more genetic content into either Congress or the Institutes of Learning.
Needless to say, these are not things I can do in isolation. I invite each and every one of you to put your SIG membership to work and volunteer to work on these projects. Some individuals who were present have already volunteered, but we will need all of the help we can get.

Finally, immediately after the networking meeting we adjourned to a wonderful dinner sponsored by Myriad Genetics. They provided us the unfettered opportunity to discuss frankly with our colleagues in genetics what some issues, benefits, and barriers are to partnership. I have heard some “rumblings” that this was a difficult, perhaps confrontational, meeting between genetic counselors and nurses. I need you all to know that it was a wonderful dialogue, where issues were discussed, but in a safe and supportive atmosphere. The word I would use was “exhilarating.” Until we know more about the barriers that exist for both nurses and genetic counselors in practice, we will never be able to overcome them. This was a wonderful first step and opens the door for what I hope will be a very productive relationship, which will benefit the profession of nursing and the practice of cancer genetic risk counseling.

Thanks again for all of your support. Please consider being active in the SIG in one of the projects mentioned above. And finally (really), stay tuned for Congress 2006 as the SIG has sponsored five sessions!

The Cancer Genetics SIG Newsletter is produced by members of the
Cancer Genetics SIG and ONS staff and is not a peer-reviewed publication.

Special Interest Group Newsletter  August 2005

Message From the Newsletter Editor
ONS Web Site Provides Resources for New Cancer Genetics SIG Members

Marilyn Kile, RN, MSN, APRN, AOCN®
Kearney, NE

In this issue of the Cancer Genetics (CAG) SIG newsletter, we welcome nearly 40 new members. In the last newsletter there were nearly twice that many. I wanted to take a moment to point out several must-read resources on the ONS Web site.

Lea, D.H., Calzone, K., Masny, A., & Parry Bush, A.M. (2002). Genetics and cancer care: A guide for oncology nurses. Retrieved August 22, 2005, from http://www.ons.org/clinical/documents/pdfs/Kit.pdf

Oncology Nursing Society. (2004). Cancer predisposition genetic testing and risk assessment counseling. Retrieved August 22, 2005, from http://www.ons.org/publications/positions/CancerPredisposition.shtml

Oncology Nursing Society. (2004). The role of the oncology nurse in cancer genetic counseling. Retrieved August 22, 2005, from http://www.ons.org/publications/positions/documents/pdfs/CancerGenetic.pdf

Oncology Nursing Society. (2005). Written comments submitted to the Secretary’s Advisory Committee on Genetics, Health, and Society. Retrieved August 22, 2005, from http://www.ons.org/lac/pdf/correspondence/109/02280501.pdf

Also, I encourage you to visit the CAG SIG Virtual Community at http://cancergenetics.ons.wego.net/?v2_group=0&p=4918.

Please let us know if there are any topics or educational needs that we can assist you with. We encourage all members to submit awards, publications, and resources that they wish to share with the membership for consideration of publication in this newsletter.

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Special Interest Group Newsletter  August 2005

Cancer Genetics SIG Annual Meeting Minutes Posted

Please refer to the following link to review the minutes from the Annual Cancer Genetics SIG meeting held in Orlando, FL, this May. These are found on the Virtual Community Web site: http://cancergenetics.ons.wego.net/file_depot/0-10000000/0-10000/3362/folder/23768/CAG+min+C05UN.doc

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Special Interest Group Newsletter  August 2005

News From the National Human Genome Research Institute (NHGRI)

Jean Jenkins, PhD, RN, FAAN
Bethesda, MD

Note: Information courtesy of the National Human Genome Research Institute, http://www.genome.gov/

Advances in Genomics to Biology: National Institutes of Health Creates Nationwide Network of Molecular Libraries Screening Centers to Accelerate Study of Human Biology and Disease
The National Institutes of Health has awarded $88.9 million in grants to nine institutions over three years to establish a collaborative research network that will use high-tech screening methods to identify small molecules that can be used as research tools. The following institutions received grants:

  • Columbia University Health Sciences, New York, NY
  • Emory University, Atlanta, GA
  • Southern Research Institute, Birmingham, AL
  • The Burnham Institute, La Jolla, CA
  • The Scripps Research Institute, La Jolla, CA
  • University of New Mexico, Albuquerque
  • University of Pennsylvania, Philadelphia
  • University of Pittsburgh, Pennsylvania
  • Vanderbilt University, Nashville, TN
Certain small organic chemical compounds, also referred to as small molecules, can be valuable tools for understanding the many important cellular events involved in health and disease, which is key to identifying possible new targets for diagnosis, treatment, and prevention. For more information, see www.genome.gov/15014443.

NHGRI Selects 13 New Targets for Large-Scale Sequencing Program
The first group of 13 new targets selected by the NHGRI for large-scale sequencing consists of nine mammals: the 13-lined ground squirrel (Spermophilus tridecemlineatus), the megabat (Cynopterus species), the microbat (Microchiroptera species), the tree shrew (Tupaia belangeri), the bushbaby (Otolemur garnettii), the hyrax (Procavia capensis), the pangolin (Manis species), the sloth (Bradypus or Choloepus species), and the Northern white-cheeked gibbon (Nomascus leucogenys).

“We want to set the stage for a greater understanding of the major biological innovations that have occurred throughout evolution, with emphasis on learning more about our own genome,” said Mark S. Guyer, PhD, director of NHGRI’s Division of Extramural Research.

Non-mammalian organisms include the M and S strains of a malaria-carrying mosquito (Anopheles gambiae) and a roundworm (Heterorhabditis bacteriophora). Researchers also will construct a physical map of the zebra finch. A complete list of organisms and their sequencing status can be viewed at http://www.genome.gov/15014493.

Scientists Analyze Chromosomes 2 and 4
In a study published April 7, 2005, in the journal Nature, a multi-institution team led by Washington University School of Medicine in St. Louis, MO, described its analysis of the high-quality, reference sequence of chromosomes 2 and 4. This detailed analysis has detected the largest “gene deserts” known in the human genome and uncovered more evidence that human chromosome 2 arose from the fusion of two ancestral ape chromosomes. Read more at www.genome.gov/13514624.

NHGRI Features Recent Articles in Genetics
Go to www.genome.gov/10506216 to download a PDF of recent articles in genetics, including “Commentary: The Knockout Mouse Project” by Christopher P. Austin, MD, in Nature Genetics. Austin discusses the international effort to make knockout alleles of all mouse genes publicly available.

Advances in Genomics to Health: Genetic and Genomic Nursing Series Addresses Health Implications of Genomic Advances
The following three articles recently published and introduced by S. Hegevary’s editorial in the Journal of Nursing Scholarship begin a new series for nurses addressing the implications of advances in genomics to health.

  • Feetham, S., Thomson, E., & Hinshaw, A. (2005). Nursing leadership in genomics for health and society. Journal of Nursing Scholarship, 37, 102–110.
  • Jenkins, J., Grady, P., & Collins, F. (2005). Nurses and the genomic revolution. Journal of Nursing Scholarship, 37, 98–101.
  • Loescher, L., & Merkle, C. (2005). The interface of genomic technologies and nursing. Journal of Nursing Scholarship, 37, 111–119.

Studies Expand Understanding of X Chromosome
The first comprehensive analysis of the sequence of the human X chromosome provides sweeping new insights into the evolution of sex chromosomes and the biologic differences between males and females. A detailed analysis of the X chromosome’s DNA sequence and a survey of its gene activity were published in the March 2005 issue of Nature. Much more work is needed to explore the implications of the new findings for human health and disease. However, "We now know that up to 25 percent of the X chromosome can be uniquely expressed in one sex relative to the other," the senior author of the study said. "Such differences should be recognized as a potential factor to explain sex-specific traits, both in complex disease as well as normal gender differences." Read more at www.genome.gov/13514331.

Brain Scans Reveal How Gene May Boost Schizophrenia Risk
Clues about how a suspect version of a gene may slightly increase risk for schizophrenia* are emerging from a brain imaging study by the National Institute of Mental Health (NIMH), National Institutes of Health. The gene variant produced a telltale pattern of activity linked to production of a key brain messenger chemical. The study found that increased activity in the front of the brain predicted increases in the neurotransmitter dopamine in the middle of the brain in subjects with the suspected schizophrenia-related version of the gene. Yet, the opposite relationship held for subjects with the other of two common versions of the gene.

"A tiny variation in the gene that makes the enzyme that breaks down dopamine causes a complete flipflop—not a mere difference in degree—in dopamine activity in these two brain areas," explained NIMH’s Dr. Andreas Meyer-Lindenberg, who, along with Dr. Karen Berman and colleagues, reported the findings in the April 10, 2005, online edition of Nature Neuroscience. See www.nih.gov/news/pr/apr2005/nimh-20.htm.

* For information about schizophrenia, see http://www.nimh.nih.gov/healthinformation/schizophreniamenu.cfm

View “Personalized Medicine: How the Human Genome Era Will Usher in a Health Care Revolution Web Cast”
NHGRI Director Francis Collins outlines his vision for the future of genomics-based medicine in a talk to the Personalized Medicine Coalition at the National Press Club.

Advances in Society
National DNA Day—April 25, 2005

The National DNA Day Moderated Chat was held Monday, April 25, 2005. NHGRI Director Francis Collins and genomics experts from across the institute took questions from students, teachers, and the general public on topics ranging from basic genomic research, to the genetic basis of disease, to ethical questions about genetic privacy. The Web cast (http://www.genome.gov/10506367) and Moderated Chat Transcript (www.genome.gov/14514261) are available for viewing.

Organizations Collaborate to Set Nursing Genetic Competencies
The NHGRI, American Nurses Association (ANA), Office of Rare Diseases, Health Resources and
National Coalition for Health Professional Education in Genetics (NCHPEG)/Genetics Resources on the Web (GROW) Web Site Features New Design
Visit http://www.nchpeg.org/ to see what resources are available, such as the Core Competencies in Genetics Essential for All Health Care Professionals.
Service Administration (HRSA), and the International Society of Nurses in Genetics are holding an invitational meeting to establish minimal genetic and genomic competencies for all nurses. The goal of this meeting is for stakeholders from educational institutions, professional associations, certifying bodies, and regulatory agencies to reach consensus on the minimal genetic and genomic competencies for all nurses regardless of academic preparation, clinical specialty, or role. The primary end point of the entire intiative is to ensure that the U.S. nursing workforce is capable of integrating clinical advances in genetics into health care as indicated by their practice. The meeting will be held on September 21 and 22, 2005, in Silver Spring, MD, at the ANA headquarters. Because of space constraints, attendance at the meeting will be limited to invitation-only people of key stakeholder organizations. However, opportunities are available to give input regarding the competencies via the ANA Web site at http://www.nursingworld.org/.

New Health Educator Joins the Staff at NHGRI
Dale Lea, MPH, RN, CGC, APNG, FAAN, joins NHGRI effective July 25, 2005, as a health educator in the Education and Community Involvement Branch (ECIB) in the Office of the Director of the NHGRI on the Bethesda, MD, campus of the National Institutes of Health.

The ECIB advises the institute director and senior staff on a broad range of issues regarding public education programs and initiatives and community involvement activities. As health educator, Dale will be developing consumer genetics health education and community involvement programs and resources and translating genetic and genomic research results into terms understandable for lay audiences. I had the pleasure of working with Dale to publish a textbook in 2005 (Nursing Care in the Genomic Era: A Case-Based Approach, Sudbury, MA: Jones and Bartlett), and she is a welcome addition to NHGRI!

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Special Interest Group Newsletter  August 2005

Case Presentation
Researchers Study Effects of MYH Gene Mutation

Patricia B. Herman, MSN, RN, AOCN®
Bethlehem, PA

Our risk evaluation program received a call from one of the colorectal surgeons looking for education and counseling for Marie (pseudonym), a 34-year-old female whom he had recently diagnosed with a rectal cancer. When we met with the young woman and her husband, their primary concern was what the cancer diagnosis and the possibility of a genetic mutation would mean for their children. The genetic counselor and I did our somewhat standard presentation about colorectal cancer syndromes and genetic testing. A three-generation pedigree was drawn, but there was no proven colorectal cancer or other cancers related to the hereditary nonpolyposis colorectal cancer syndrome in any of the generations. Because the colonoscopy revealed at least a dozen polyps, we were concerned that this might represent an attenuated familial adenomatous polyposis (FAP) syndrome. We reviewed our findings with the genetic experts at our affiliated hospital, and they confirmed our suspicion that we may be dealing with an attenuated FAP. After obtaining insurance coverage and informed consent, a blood specimen was sent to Myriad Genetics. We were quite surprised when about three weeks later we received word that they had found one mutation of MYH and were now doing full sequencing looking for a second mutation. The MYH gene encodes for a protein that is involved in the repair of DNA damage.

MYH is an autosomal recessive colorectal cancer syndrome. This is a rare syndrome that was reported recently. In research published in the United Kingdom in 2002, Al-Tassan et al. (2002) looked at a family that had three siblings who were affected with adenomas and carcinoma yet did not have a change in the APC gene. These siblings were found to be compound heterozygotes for variants in the MYH gene.

In an article in Lancet, Sampson et al. (2003) studied 614 families identified in a registry of polyposis. Of these families, 111 did not have evidence of APC gene mutation, but molecular genetic testing demonstrated that 25 had biallelic mutations of the MYH gene.

For Marie and her family, it means that each of her children is an obligate carrier of the MYH mutation. Her siblings also are at risk for either carrier status or full mutation. Unfortunately, it is not certain what the risk is for a person who is a carrier of an MYH mutation. It seems that the person is not at increased risk for development of colorectal cancers, but more research is required to answer the question fully.

What does this mean in the “real world” of education and counseling? Is it appropriate to include an explanation of MYH mutation in the context of “other rare syndromes,” or should we wait and do the education only if necessary? It is fascinating to be involved in the ever-changing world of genetic development and education!


Al-Tassan, N., Chmiel, N.H., Maynard, J., Fleming, N., Livingston, A.L., Williams, G.T., et al. (2002). Inherited variants of MYH associated with somatic G:C-T:A mutations in colorectal tumors. Nature Genetics, 30, 227–232.

Sampson, J.R., Dolwani, S., Jones, S., Eccles, D., Ellis, A., Evans, D.G., et al. (2003). Autosomal recessive colorectal adenomatous polyposis due to inherited mutations of MYH. Lancet, 362, 39–41.

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Special Interest Group Newsletter  August 2005

Conference Review
Fox Chase Cancer Center Offers Free Web Cast, Continuing Education Credit

Marilyn Kile, RN, MSN, APRN, AOCN®
Kearney, NE

In March of this year I attended the “Cancer Genetics 2005: Focus on Colon and Ovarian Cancers, Bridging Science and Practice” third annual conference, hosted in Philadelphia by the Fox Chase Cancer Center. This conference provided attendees with information on the latest research findings as well as current methods for medical management of patients with colon and ovarian hereditary cancer syndromes.

One session that I found particularly interesting was “Reproductive Risk Factors and Ovarian Cancer” by Roberta Ness, MD, MPH, from the University of Pittsburgh. This presentation reviewed prevention strategies and the role of inflammation in the development of ovarian cancer.

At the conference, it was announced that the Suzanne Feinstein Foundation for Ovarian Cancer was providing an unrestricted educational grant to make many of the presentations from the conference available online. The Web cast is available at www.fccc.edu/medical/cancergenetics2005.html. The program is free, and continuing education credit can be obtained.

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Special Interest Group Newsletter  August 2005

Genetic Antidiscrimination Policies Move Forward

Agnes Masny, RN, MPH, MSN, CRNP
Philadelphia, PA

The Secretary’s Advisory Committee on Genetics, Health, and Society (SACGHS) gave an update on issues related to genetic antidiscrimination legislation at its June 15–16, 2005, meeting. The Genetic Information Nondiscrimination Act of 2005 (H.R. 1227) was introduced into the House on March 10, 2005. Representative Judy Biggert (R-IL) sponsored the bill. Key cosponsors include Bob Ney (R-OH), Anna Eshoo (D-CA), and Louise Slaughter (D-NY). The bill has 101 cosponsors, with a greater majority of Democratic cosponsors than Republican.

To get this bill passed, more Republican support is needed. In today’s political climate, this bill will not get anywhere unless there is bipartisan cosponsorship. The committee was hopeful that contacts from professional groups and individual citizens with their respective Republican representatives would help to move this bill through the House. President Bush has already given support to the Senate bill and will support a House measure.

Health and Human Services (HHS) Secretary Leavitt recently received a letter from SACGHS urging him to use his leadership to bring about enactment of federal genetic nondiscrimination legislation. Along with the letter was

  • A compilation of public testimony (10-2004) and literature on genetic discrimination (this book is almost three inches thick)
  • A DVD summary of the public testimony (You can view this compelling testimony on the SACGHS Web site at www4.od.nih.gov/oba/SACGHS/meetings/June2005/
  • An analysis of the adequacy of current law in protecting against genetic discrimination in health insurance and employment. Legislative gaps were identified in both areas but more notably in the employment legislation.

Nursing Implications
We have never been closer to getting federal legislation passed. Nothing works better than representatives hearing from their constituency. If you view the testimony, tell your representatives about the testimony. Also request that they support HR 1227. With the help of professional nursing organizations and individual nurses, federal legislation will become a reality.

Coverage and Reimbursement of Genetic Tests and Services
After consideration of more than 80 responses to the draft report on coverage and reimbursement, some of the key recommendations include

  • The Secretary should task an appropriate group or body to develop a set of principles to guide coverage and reimbursement for genetic tests.
  • Medicare beneficiaries who lack current signs, symptoms, or personal histories of illness stand to benefit clinically from predictive and predisposition genetic testing and services. As such, SACGHS recommends that preventive services, including predisposition genetic tests and services, meeting evidence standards should be covered under Medicare.
  • In many cases, payment rates for genetic tests are lower than the actual cost of performing the test. Until the fee schedule can be considered in a comprehensive way, the secretary should direct Centers for Medicare and Medicaid Services to address variations in payment rates for the genetic testing Current Procedural Terminology (CPT) codes through expeditious implementation of its inherent reasonableness authority.
  • The secretary should identify an appropriate entity to determine
    • Which health professions are qualified to provide genetic counseling services
    • Among those qualified, which health professions should be able to practice without physician supervision, and thus directly bill payers for their services. The criteria used to guide these decisions should consider the credentials, licensure status, and scope of practice of these professions, as well as other criteria deemed appropriate. A number of professional societies, such as the American Board of Genetic Counseling (ABGC) and the Genetic Nursing Credentialing Commission (GNCC), have developed standards, which could be used as a reference point.

Because genetic information has the potential to be integrated into all areas of health care, and providers have an important role in ensuring appropriate access to genetic tests and services for diverse populations, there is critical need to support the ongoing training and continued education of health providers in genetics and genomics.

Nursing Contributions
Several nursing organizations provided comment to the Coverage and Reimbursement draft report. This input was seriously considered and was incorporated into the final recommendations. Nursing input definitely made a difference for the recommendation of who would provide oversight regarding the qualifications of those providing genetic counseling services. The ABGC and GNCC were used as examples of organizations having standards for qualifications but were not identified as the groups to oversee who is qualified as was implied in the draft recommendations.

Large Population Studies
As a priority area of SACGHS, a task force was commissioned to further explore a major national research effort to identify the genetic contributions to disease and drug response through a large, longitudinal population-based cohort study involving the collection of genotypic and phenotypic data from representative populations. The members requested a report about HHS initiatives in this area and an opportunity to comment on any ethical, legal, or social challenges they may pose.

The Role of Nursing

Nurses should be poised to give feedback regarding participation of diverse populations in any large population study. Additionally, nurses who have interfaced with hosts of patient populations could provide comment on any of the ethical issues arge population studies may pose.

. One full day was given to update advisors on the impact and issues related to pharmacogenomics. “Pharmacogenomics” is defined as the use of genetic or genomic tests to determine individual differences in drug effectiveness and/or toxicity in attempts to give “the right drug to the right person.” The field of cancer is already integrating pharmacogenetic information into practice. Several presenters used the following examples:
  • Testing for TPMT metabolism to identify toxicity profiles for treatment with 6-mercaptopurine and the use of targeted therapies like Herceptin® (trastuzumab, Genentech, South San Francisco, CA).
  • The U.S. Food and Drug Administration already has given approval for the AmpliChip™ (Roche Molecular Diagnostics, Pleasanton, CA) to measure alleles of CYP2C19 and CYP2D6.
The presenters made it clear that to make pharmacogenomics a reality in practice, an infrastructure/system to produce the evidence and then a system to help to integrate the evidence into practice are needed.

Nursing Implications. The field of pharmacogenomics will rapidly impact patient education regarding patients’ genetic drug metabolism profile and the nursing role in assisting patients in treatment decisions based on their pharmacogenomic profile and/or genetic disease profile. Continued efforts incorporating genetics/genomics education and training of nurses are critical at all levels of nursing education.

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Special Interest Group Newsletter  August 2005

Welcome to New Members

Bagley, Janet Everett, WA
Boyd, Jennifer Minneapolis, MN
Colchin, Lacey Omaha, NE
Conner, Pamela Kingsport, TN
Cunningham, Nancy Merced, CA
David, Gradyne Bonita Springs, FL
Dickerson, Jill Ben Wheeler, TX
Downing, Judy Sacramento, CA
Eberle, Elizabeth Bristol, TN
Farrell, Michael Dublin, Ireland
Gambol, Patricia Seal Beach, CA
Giambarresi, Therese Mount Airy, MD
Gill, Evelyn Omaha, NE
Gordon, Patricia Pittsburgh, PA
Ha, Lisa Woodridge, IL
Horner, Anna Columbus, OH
Ling, Li Pearland, TX
McGuire, Frances Danbury, CT
McKamie, Tammy Texarkana, TX
McManus, Anne Millis, MA
Meyers, Mary Rice Lake, WI
Mompoint, Marie Norcross, GA
Muellenbach, Renee Durham, NC
Murphy, Trisha Ambler, PA
Perno, Charlene Astoria, NY
Popick, Jane Columbia, MD
Que, Abella Escondido, CA
Ranke, Margaret Holly, MI
Rinaldi, Marie San Mateo, CA
Russell, Teresa Jefferson City, MO
Schultz, Claire Framingham, MA
Skeen, Rebecca Houston, TX
Smedley, Amy Wyomissing, PA
So, Hyang-Sook Kwang-Ju, South Korea
Todd, Annette Louisville, KY
Whittaker, Jennifer Lynchburg, VA
Wilkens, Gayle Weatherford, TX
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Special Interest Group Newsletter  August 2005

Membership Information

SIG Membership Benefits

  • Network with colleagues in an identified subspecialty area around the country.
  • Contribute articles for your SIG’s newsletter.
  • Participate in discussions with other SIG members.
  • Contribute to the future path of the SIG.
  • Share your expertise.
  • Support and/or mentor a colleague.
  • Receive information about the latest advancements in treatments, clinical trials, etc.
  • Participate in ONS leadership by running for SIG coordinator-elect or join SIG work groups.
  • Acquire information with a click of a mouse at http://sig.ons.wego.net/index.v3page;jsessionid=l5nhe8e4qt77?v2_group=0&p=4918, including
    • Educational opportunities for your subspecialty
    • Education material on practice
    • Calls to action
    • News impacting or affecting your specific SIG
    • Newsletters
    • Communiqués
    • Meeting minutes.
Join a Virtual Community

A great way to stay connected to your SIG is to join its Virtual Community. It’s easy to do so. All you will need to do is
  • Log on to the ONS Web site (http://www.ons.org/).
  • Select “Membership” from the tabs above.
  • Then, click on “ONS Chapters and Special Interest Groups.”
  • Scroll down to “Visit the ONS Special Interest Groups (SIG) Virtual Community” and click.
  • Now, select “Find a SIG.”
  • Locate and click on the name of your SIG from the list of all ONS SIGs displayed.
  • Once the front page of your SIG's Virtual Community appears on screen, select “New User” from the top left. (This allows you to create log-in credentials.)
  • Type the required information into the text fields as prompted.
  • Click “Join Group” (at the bottom right of the text fields) when done.

    Special Notices
    • If you already have log-in credentials generated from the ONS Web site, use this information instead of attempting to generate new information.
    • If you created log-in credentials for the ONS Web site and wish to have different log-in information, you will not be able to use the same e-mail address to generate your new credentials. Instead, use an alternate e-mail address.
Subscribe to Your SIG’s Virtual Community Discussion Forum

All members are encouraged to participate in their SIG’s discussion forum. This area affords the opportunity for exchange of information between members and nonmembers on topics specific to all oncology subspecialties. Once you have your log-in credentials, you are ready to subscribe to your SIG’s Virtual Community discussion forum. To do so,
  • Select “Log In,” located next to “New User,” and enter your information.
  • Next, click on the “Discussion” tab on the top right of the title bar.
  • Now, select “Featured Discussion” from the left drop-down menu.
  • Locate and select “Subscribe to Discussion” inside the “Featured Discussion” section.
  • Go to “Subscription Options” and select “Options.”
  • When you have selected and entered all required criteria, you will receive a confirmation message.
  • Click “Finish.”
  • You are now ready to begin participating in your SIG’s discussion forum.
Participate in Your SIG’s Virtual Community Discussion Forum
  • First, log in. (This allows others to identify you and enables you to receive notification [via e-mail] each time a response or new topic is posted.)
  • Click on “Discussion” from the top title bar.
  • Select “Featured Discussion” from the left drop-down menu.
  • Click on any posted topic to view contents and post responses.
Sign Up to Receive Your SIG’s Virtual Community Announcements

As an added feature, members also are able to register to receive their SIG’s announcements by e-mail.
  • From your SIG’s Virtual Community page, locate the “Sign Up Here to Receive Your SIG’s Announcements” section. This appears above the posted announcements section.
  • Select the “Click Here” feature, which will take you to a link to subscribe.
  • Once the “For Announcement Subscription Only” page appears on screen, select how you wish to receive your announcements.
    • As individual e-mails each time a new announcement is posted
    • One e-mail per day comprised of all new daily announcements posted
    • Opt-out, indicating that you will frequently browse your SIG’s Virtual Community page for new postings
  • Enter your e-mail address.
  • Click on “Next Page.”
  • Because you have already joined your SIG’s Virtual Community, you will receive a security prompt with your registered user name already listed. Enter your password at this prompt and click “Finish.”
  • This will bring up a listing of your SIG’s posted announcements. Click on “My SIG’s Page” to view all postings in their entirety or to conclude the registration process and begin browsing.
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Special Interest Group Newsletter  August 2005

Cancer Genetics SIG Officers

Judith (Judie) Kehs Much, CRNP, AOCN®, APRN-BC
Oncology Nurse Practitioner
Integrated Oncology Care
Cedar Crest & I-78, Suite 408
Allentown, PA 18105
610-402-9097 (O)

Jennifer Loud, RN, MSN, CRNP
7417 Miller Fall Rd.
Derwood, MD 20855-1121
301-435-8062 (O)

Deborah MacDonald, RN, MS, CS, APNG(c)
City of Hope Comprehensive Cancer Center
1500 Duarte Rd.
Duarte, CA 91010-3012
626-256-6882 (O)

Newsletter Editor
Marilyn Kile, RN, MSN, APRN, AOCN®
Good Samaritan Health Systems Cancer Center
10 East 31st St.
Kearney, NE 68848-1990
308-865-7199 (O)
308-865-2907 (fax)


Newsletter Co-Editors
Patricia Kelly, RN, MS, AOCN®
9649 Covemeadow Dr.
Dallas, TX 75238-1819
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Patricia B. Herman, MSN, RN, AOCN®
St. Luke's Hospital and Health Network
801 Ostrum St.
Bethlehem, PA 18015
610-954-3579 (O)
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ONS Publishing Division Staff
Amy Nicoletti, BA
Copy Editor
412-859-6328 (O)

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ONS Membership/Leadership Team Contact Information

Angie Stengel, Director of Membership/Leadership

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Carol DeMarco, Membership/Leadership Administrative Assistant

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Oncology Nursing Society
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